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Tracy Estelle
Founder and President/CEO

Daniel J. Bryant

Chief Technology Officer

Karen Davis Miller
Co-Founder and Executive Director

Carole Miller

IT Consultant

Vonzetta M. Thomas
Co-Founder and Chairman of the Board

Cheryl L. Freeman

Director, Public Relations 

Summer M. Thomas
Co-Founder and Chief Financial Officer

Dr. Stanford Oglesby, Ed.D

Director, Education

ABOUT US

Rising Above Sickle Cell Anemia, Student Pursues Energy Innovations

MARU Advocates, LLC, was established in 2020 with the purpose of  raising awareness of critical diseases and advocating for more to be done to aid all who are impacted.

 

VISION

Access to quality care, treatment, and support for all. Until all critical diseases have a cure.

To ensure the efficacy of our efforts, we meet with health organizations and providers to understand the greater need.  We learn about programs being offered. We also learn about proposed legislation that would provide research dollars and mandates for advancements in medical education and protocols. Despite all that is currently being done, it still is not enough to generate the type of change we strive to see.  

 

In 2021 we expanded our focus to include fundraising and obtained our 501(c)3 designation. The collective resources and talents of our team enabled us to transition into event planning. We plan, coordinate, and  facilitate social and/or fitness events as a way to promote health, community engagement, and to drive donations to health-centric organizations.

MISSION

Money and recourses united to improve the lives of people impacted by critical diseases. 

We set an ambitious goal to raise $5000 by the end of our first year. These funds will benefit community health organizations that provide support for diseases such as Sickle Cell, Lupus, Prostate Cancer, and Multiple Sclerosis as well as the people who rely on them. We are committed to educating the public and sharing information about the work that is needed and the work that is being done to provide treatments and cures. By hosting impactful events we hope to encourage members of the community to get engaged and contribute. With your support we are confident this goal will be met.

Article by Mike Cavaliere February 15, 2021

Eagle senior Raymond Miller is not defined by his disease.

For years, he would avoid sharing information about his experience with sickle cell anemia with others, for fear that it would change the way they look at him. But now, he sees it differently. Now, he sees his story as one of survival — not just of struggle.

“I have been dealing with this my whole life,” he said, explaining that the disease causes his blood cells to become “sticky,” to where they don’t carry as much oxygen as they’re meant to and travel too slowly throughout his body. “This can cause pain episodes, or what they call ‘crises.’”

Back in middle school and high school, these episodes would be so painful that he would often have to go to the hospital in the middle of the night, sometimes until 3-4 a.m.

“I would then go to school heavily medicated on pain meds the next morning,” said the Alexandria, Virginia, native. “I wanted to learn no matter the condition I was in, because my drive and ambition was all I could see — then as well as now.” 

That ambition led him to Embry-Riddle Aeronautical University’s Bachelor of Science in Mechanical Engineering degree program, where he’s also pursuing a minor in Business Administration.

“I love this field of study because of its possibilities, the benefits it can and will make in communities lacking in accessibility to quality resources, as well as in how the nation produces electricity for decades to come," he said. “Renewable energy is growing rapidly, with calls to become net zero carbon by 2050 and moving the transportation sector away from fossil fuels.”

Initially drawn to Embry-Riddle through its Aerospace Engineering program, Miller’s passion for aircraft began to focus more specifically on their engines.

“I didn’t realize it early on, but I came here trying to start research in recycling cooking oil for jet fuel,” he said. “I realized the capabilities of Clean Energy Systems. … Power production still contains the engine portion of my interests, but it reminds me of the better ways to use resources in our environment.”

It hasn’t always been easy for Miller, but whenever he needs a jolt of inspiration to keep him going, he thinks of his grandfather — who, throughout his life, never let his own battle with sickle cell anemia slow him down.

“He was in the military and ran for public office, setting the example that this disease cannot stop a person’s ambition,” he said. “On occasion, I dream of talking to him about my struggles and success, but I know he would be proud of my accomplishments and what I plan to achieve in the future."

Namely, he plans to invent and implement power systems that do not contribute to global warming. A member of the American Society of Heating, Refrigerating and Air-Conditioning Engineers, as well as the Organization of Black Aerospace Professionals, he cultivates these ideas with the help of his peers in the Daytona Beach Campus community. His end goal: to promote creative, long-term solutions to the various problems surrounding global energy use.

“Sustainability is the key to maintaining an efficient, healthy and thriving environment,” he said. “The environment gives all these resources for free, and all it asks for in return is to be cared for.”

If we can do that, he added — if we can push forward in spite of challenges to keep chasing our goals — “humans will reap the benefits.”

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